Ninni and Send Björkander, and their three children, living together in a house on the island. They had a big renewal plans for the house, but the two weeks before christmas in 2016, suffered a mellansonen Lucas is a massive hjärtmuskelinflammation.
Hjärtmuskelinflammationen, Lucas was struck by was not entirely unusual, but Lucas was a very young man, and his values were sky-high. When it was the worst of all was Lucas not to move at all, and neither do his brothers and sisters.
" I didn't get to be angry. I didn't get to be happy. I was not allowed to be sad, " says Lucas, ”Sofia's angels”.
When his values are stabilized, what they didn't know what it was that he had suffered, and, therefore, there was no treatment to offer. In a year, to watch over the family, over to him, constantly then, the thought that he might die.
"It's the worst thing that can happen is that he will die of acute heart failure in his sleep," says Ninni program.
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A year later, Lucas was for a DNA test to know his or her diagnosis – he was suffering from a rare disease, LGMD2E, which is a type of muscular dystrophy (dmd). The disease is a progressive disease, which means that he is getting sicker and sicker. It is a permanent and not a medicine or relief is to make.
" He's not going to die at any moment. However, he will have to suffer and wither away, " says Ninni ”Sofia's angels”.
the Disease leads to an early death, and no one knows where the process will be fast or slow. If he goes to when he reaches the age of 18 if you're counting, that he or she has the slow version, but he has the speed, he will at 18, the age of sitting in a wheel chair.
" I want to be just like a normal person. And don't have to think about that, I'm going to end up in a wheelchair may not be able to go and do stuff, " says Lucas of the programme.”Worried about him all the time,”
The exterior is visible, not the disease, but Lucas has been a constant pain and unable to walk up the stairs. He could not take part in any and all activities that other children of his age are doing.
"we are of course worried about him all the time, and how it's going to be, and what is going to happen, "says Lucas' mother, ”Sofia's angels”.
the Family planned the renovation work came to an end, when Lucas fell ill, but it is now more important than ever before, when Lucas was just getting worse and worse. In today's episode of ”Sofia's angels”, the family's help to complete the renovation.
" It was absolutely fantastic. We had a bathroom down there and he (Lucas) has her bedroom, and helped us a lot, " says Ninni Björkander.
”Sofia's angels”, and had a family, was something that the whole family appreciated, not only for that, the house was renovated.
"In the meantime, they helped us a lot by just being there, "says Lucas' mother.
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